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← Return to Decreasing Prednisone
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Polymyalgia Rheumatica (PMR) | Last Active: 20 hours ago | Replies (24)
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During first five months of my PMR/GCA journey, I followed my rheumatologist's tapering schedule. In December 2024, I had a flare during the holidays and I took it upon myself to increase my prednisone. First, I increased by 3 mg., then 5, when I wasn't getting any relief. I have learned through this forum, that there is no right or wrong tapering schedule. It's dependent on the individual. I consulted with my rheumatologist when I wanted to adjust my dosage to suit my symptoms. She had no problem with me taking control of my taper.
Replies to "During first five months of my PMR/GCA journey, I followed my rheumatologist's tapering schedule. In December..."
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I have a question for anyone to answer with their opinion.
I started on prednisone last Sept. 20mg, tapering 2.5 every 30 days. I was responding very well. until I dropped to 7.5.
I found through the forum, that after 10 I should be dropping 1mg per 30 days. My rheumatologist at that time flatly refused to give me a presciption other then 5mg.
I went back to my general MD and was able to get 1mg's. I have been good dropping by 1mg until I got to 6. Symptoms came back immetiatly and very strong. I went back to 7. Symptoms didn't reduce by much. Went to 8 for the last 4 days. The symptoms have been better, but are still quite strong. Shoulder, upper arms, wrists, and a new stiffness in the fingers. I take acetaminophen to keep it at bay during the day.
Ok: my question. Should I maintain at 8mg, and see if the symptoms go away, or go on to 9mg or 10mg if needed. Once the symptoms are gone, should I go back to 1mg reducing at 30 days, or can I speed the reductions up?
I have no Doctors to confir with, as my general doesn't know to much about PMR, and I can't get into a new rheumatologist until end of August.