← Return to Mystified. Moving pain below waist and in both legs

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@gypsyfaith

I have had the same kind of problems-- but because I have scoliosis and a 30 degree twisted spine, many docs just related the pain, moving pain, electro-like shocks as all related to that. However, since I started participating in DNA research as a subject, one day a report came that said I had a DNA pre-disposition to having high URIC acid as a trait. I recalled my grandfather having a radical case of gout and what he went through - ending up in wheelchair, etc. I took the DNA report to my doctor and was met with resistance from their staff. They did not even want to look at the report. However, one PA decided to do a blood test and with her reluctant attitude I thought it might be that she wanted to prove the report wrong. But, guess what ! My score was 7.2. Then when seeing a hematologist for my blood clotting problems, the doctor did a uric acid test -- score 7.5 and that report went to my GP office --- they tested me within 2 weeks of the hematology test and that one came out 7.8. So, then i got a call from the GP office that they are giving me the diagnosis of Gout and ordered meds. Now, I have been going thru this struggle with that doctor/staff and for over 6 months with this issue and I am getting ready to move on to another medical practice because of having to go thru struggle just to get decent health care. I am 76, in chronic and acute pain daily and even as I try to help the health care profession to help me, it is resistant to doing it adequately -- of course, insurance is driving a lot of medical professionals to resist more tests and more diagnosis and more treatments because of their reluctance to pay. I used to be a clinical social worker was an insurance provider and I get it -- but my ethical code said I had to do the best for each client regardless of my frustrations or desire to just not go the extra mile to challenge the insurance companies. Well, I will tell you this -- it is more than worth it to participate in DNA research because it has validated all of the hard-learning self knowledge about my body and health that I have told doctors about my history for years. And when I have taken the DNA reports to my cardiologist, my hematologist, and pulmonologist, they all said it made sense to show them. The only resistant group has been the general practitioner group. Good luck with your venture to find the best care that you can get !

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Replies to "I have had the same kind of problems-- but because I have scoliosis and a 30..."

@gypsyfaith Good for you! This is a good lesson and you were right to fire your doctor for one who will listen. Pain can come from many sources and a provider assuming that they understand the issues when they won’t consider something outside of their expertise is not good medicine. The good multidisciplinary medical facilities like Mayo and others do this and consult with others about your case.