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PMR and the taper

Polymyalgia Rheumatica (PMR) | Last Active: 7 hours ago | Replies (66)

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@marymckeith

Okay. I have been off Prednisone for several months. I have had Symphoni infusion and having pain in walking and moving. I am ready to give up completely. I called in to my rheumatologist and she said to go back on 1 mg
Prednisone 3 times a day. I have tried so hard to get off it that I hesitate to go on that merry-go-round again. I think that dosage isn't high enough to make a difference and it led to diabetes medication that I am now off. Nothing has worked and they don't seem to know how to treat it. Orencia infusion made me very sick and I had to stop. I am up in age so as I said - I am REALLY ready to give up. It is like being alive but not really living. What I loved to do is gone.

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Replies to "Okay. I have been off Prednisone for several months. I have had Symphoni infusion and having..."

Ask Dr abt Kevzara…..game changer for me.
I was stuck at 8mg prednisone and was able to taper quickly.
After 7 doses of Kevzara (over 14 weeks) I’m down to 2.5 mg prednisone. I have been dropping 1/2 mg weekly lately. No side effects, or PMR flares. Hope to be off by August 1. 🤞
Note: my dr wanted me to go cold turkey after starting Kevzara, but I was not comfortable with that and have been doing the self administration.
Good luck