← Return to Temporal Arteritis

Discussion
hoosierlarry avatar

Temporal Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jun 26 7:15am | Replies (17)

Comment receiving replies
Profile picture for terrib2 @terrib2

This pred tapering info tempts me to self taper rather than wait for my rheumatologist. I’ve had terrible side effects. Started at 60 in March and now at 20 and have had two Actemra infusions. In my opinion prednisone should be dosed out by weight. Normally I don’t take medication and a Tylenol to me is like a pain pill. Have you tapered your pred or was it ordered by your rheumatologist? I may taper to 15 starting tomorrow.
I’ve had no issues with the Actemra. I did notice a week before my second monthly infusion I had more than usual fatigue. The third day after my energy level increased and I felt better.

Jump to this post


Replies to "This pred tapering info tempts me to self taper rather than wait for my rheumatologist. I’ve..."

I was started at 40 mg on mid May and am now at 15 mg . Only side effectes are a little increase in blood pressure to 130'3 and mid 70's, and increase in heart rate faster when exercising.
I am going to tell doctor on July 1 I want to go to 10 mg .
I am not scheduled to start Actemra until August due to Fed Govt Blue Cross insisting I be on Prednisone for three months before they approve Actemra. I refused to pay the $3000 to start in July.