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My "leg problems" began immediately - swelling and on my right leg, a rash on the inside of my right thigh and on the right ankle. This was April/May 2023. Two ER visits and a derm visit + PCP and lots of guesses and 7 different salves and nothing helped. Then my legs were both swollen - esp the right one. Had an extended ultrasound and no issues seen but was told it was lymphedema and to get wraps. Did. Used them faithfully. No change. THEN a "long COVID specialist" (quotes because I question their expertise) said, just by looking at my legs, it was lipedema and I had two choices - liposuction or massage. Neither was possible for a variety of reasons. I then got a strange rash - like teeny blisters - on my right lower leg and some larger ones on my thigh. Almost all on the right leg where the initial rash (NEVER biopsied or tested in any way) was. The lower leg "blisters" would open, the skin would dry and then the rash would keep moving around my leg.

During all this, I could barely wear any shoes and bought Birkenstocks to accommodate swollen feet. Then all of a sudden - literally - both legs were unswollen. My left leg looks like my leg; the right still has swelling around the ankle. It is the first time since the Summer of 2022 that I could again put on Summer shoes and my slippers and Birks are too big w/o socks!

My right leg hurts all the time. Yes, a feeling of heaviness, pain walking (as well as pain in upper abdomen that also makes walking difficult -- plus I have spinal stenosis and arthritis in my back and am 78 so walking, that I used to do everywhere, literally, bec I don't drive, is now impossible even from desk to bathroom, only about 7'.

Recent ER visit when I couldn't stand up at all showed lots of abnormal blood test results indicating possible infection and/or return of NHL - non-Hodgkin lymphoma ( with which I was diagnosed in 2007 and for which I had radiation.) PET scheduled in July - first appointment I could get.

My arms too feel very heavy. And from what I've read about COVID toes and rashes, it all likely could've triggered the NHL return or it's separate.

What's been so difficult is that so many long COVID clinics and specialists are no longer doing anything making it very tough to manage.

I did get a pedal thing for under my desk - tho' long COVID forced me to retire this year, I still use my desk and computer for much. It helps get my legs moving.

NO idea if we are all suffering from/dealing with the same "leg issues".

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Replies to "My "leg problems" began immediately - swelling and on my right leg, a rash on the..."

Anyone who suffers from a strange rash should be checked for celiac disease (start with a blood test for this).