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Skin squamous cell carcinoma (recurring)

Melanoma & Skin Cancer | Last Active: Jul 13 12:59pm | Replies (125)

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Profile picture for louisejewell @louisejewell

Me too...I've been on Libtayo a year now and they want me to stay on for another year. SCC got into a lymph node on my neck after many years of mohs in various head/face areas. I've not had any more skin lesions for a long time so that tells me its helping. I had an extra treatment to the lymph node that killed all the cancer within. It was a needle inserted directly that was filled with ethanol. A PET follow up showed the growing cells were destroyed! So happy with Mayo Jacksonville even though its a 2 hr drive each way.

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Replies to "Me too...I've been on Libtayo a year now and they want me to stay on for..."

Glad to hear you have been happy at Mayo in Jacksonville. I have had over the last 10 yrs over 30 mostly sq cell skin cancers. In the last year I have had on my left lower leg a sq cell skin cancer recur 4 times each time within a month of mohs surgery. I recently completed Electron Beam Radiation for 6 weeks. It’s been 5 weeks and it looks like it has already recurred. I have a biopsy scheduled in the next few days to confirm.
Due to the number of excisions if I had another surgery it would have to be open.
I went for a second opinion a while ago at Moffitt and I was basically told to continue the surgery unless it metastasizes!
Wasn’t happy with that so will seek a third opinion at Mayo Jacksonville.
I think the next step may be Libtayo.
BTW. I tolerated my EBT radiation with just some moderate skin irritation and it was my lower leg
Interested to hear other impressions of Mayo in Jacksonville and experience with immunotherapy
TIA