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Offering hope: Dad's journey with Glioblastoma stage 4
Brain Tumor | Last Active: 15 hours ago | Replies (31)Comment receiving replies
Thank you for the reply. We await a call from Mayo on Thursday June 26. Not sure if they will look at his records but we want to be sure to have our second opinions on how to proceed should this area continue to grow (slowly it seems). Mostly
FLAIR signal right now but subtle increased over the last 8 months. If we go forth with radiation then I want to gather all information available to determine if we would stay at Ivy Brain Tumor/ Barrow (in Phoenix . Meeting with radio oncologist in mid July and next MRI in August.
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I just got on this website and I'm glad to hear what people are saying. My husband was diagnosed with a GBM IDH wildtype on March 12th. He was riding his bike and afterward collapsed. He's 66 and in great shape. Brain surgery on his left frontal lobe, on March 21st removed 60%. It was too close to his speech and memory to take out more. Tomorrow he finishes the 6+ weeks of radiation. He had to stop the chemo pill 2 weeks ago because platelets were so low. In late July he'll begin the 6-month regime - 5 days of chemo pill, 23 days off. We live in Baltimore and he's at Johns Hopkins.
I'm having this debate with myself about learning the doctor's prognosis so I can have some kind of framework moving forward as far as time. On the other hand, I realize no one really knows. I'm not quite sure what to do about it yet. Step by step we go.