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Colleen Young, Connect Director avatar

Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: 4 days ago | Replies (558)

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Has any one had conflicting diagnostics? I had PET/CT and Singtura, both cancer free. Yet my CA125 is rising. My oncologist prescribes a CT with contrast to see any tiny cells. She says it’s unusual to have this type of test discrepancy…anybody have similar experiences? In the mean time I’m focusing on the two “no cancer” tests.😊

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Replies to "Has any one had conflicting diagnostics? I had PET/CT and Singtura, both cancer free. Yet my..."

Yes, scans can be behind the cancer antigen; 125 in your case. Nodules and lesions have to be large enough to see. In my type of cancer (pancreatic) smaller nodules or lesions can be seen with endoscopy.

I recently had my CT scan July -16 and my cancer doctor said it’s great that everything looked good but soon after having the scan my CA125 was high it was 38 now it keeps going up every time it’s checked. I was told to focus on my scan that was good and keep getting CT Sans every few months is routinely done. So I haven’t got a straight answer yet for anyone as to why it’s going up every time and it’s so concerning for me I wish they’d just tell me why or if it’s normal you know? And I only get Ct scans idk why i don’t get any other kind of test or scans ?idk know what a sigtura test is or pet ? I really hope you’ve figured it out with your doctor ik it’s frustrating