@grammato3: My experience with Somatuline Depot 120mg injections for NET is definitively NOT the same as Lanreotide 120mg injections for NET tumors cancer. Somatuline Depot required DEEP hip injections that were painful and would form lumps in my hips that slowly resolved over the 28 days. Lanreotide hip injections are given in hip like a regular injection and are rarely painful.
I was given Somatuline Depot for 1 year at 28 day intervals, with no tumor progression whatsoever. Then Oncoligist switched to Lanreotide, within 3 months my scans revealed 40% tumor progression. I have continued Lanreotide injections and am grateful to have received (6/24-12/24) Lutathera PRRT infusion treatment that produced significant tumor size reduction, or complete resolution of my NET tumors.
I know the Oncology community have been given “same drug” info -
I have read all the supportive literature and am not the only Somatuline Depot NET patient to question the difference in Lanreotide drug. There are distinct differences in these two drugs. Many of my peers and I believe that Somotuline Depot was superior in controlling tumor progression! I probably will never discover why Somotuline Depot is no longer available for NET patients.