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Long COVID providers/specialists?
Post-COVID Recovery & COVID-19 | Last Active: Feb 1 1:11pm | Replies (79)Comment receiving replies
Be aware that just about every specialty still are learning about long term affects. Unfortunately if they can't get to the bottom then you're shipped to another specialty.
I have suffered since 2-2022, even spent 2 weeks at Mayo and still left with an inconclusive diagnosis.
It's frustrating, depressing and sometimes you experience PTSD with all the gaslighting from physicians.
I would much rather a doctor tell me I don't know then to make me feel either crazy or unheard.
Replies to "Be aware that just about every specialty still are learning about long term affects. Unfortunately if..."
Sure this will be classified as a slow advancing terminal disease at some point. The inflammation migration throughout the body organs is becoming an obvious major long term issue.
Ha! Indeed-- I so agree with you. My best docs are able to say... wait for it... "I don't KNOW" ( gasp! ) So many of us want answers to un-knowable questions, and egos are tied up in all of this too. Long COVID from 3/2020, and
My experience: Most drs who cannot find an answer become impatient and often will blame the pt. This illness is politicized and many don't want to deal with it at all.
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Thank you for that cheryl46.
I would love to hear more about people's experiences with Mayo clinic and how the approach LC, given that this IS, after all, a Mayo cliic discussion board!