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← Return to Switching from Orgovyx to Bicalutamide
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Switching from Orgovyx to Bicalutamide
Prostate Cancer | Last Active: Jun 26 12:57pm | Replies (19)Comment receiving replies
I was Gleason 9, Decipher .99 and Stage 4a. Surgery + ADT (Orgovyx) + pelvic radiation. I've been on Orgovyx 29 months total, 25 months since radiation. PSA < 0.01 since radiation + Orgovvx (25 months). I've had no serious side effects from Orgovyx. Only SE so far have been joint and muscle weakness and low energy and easily tired. I've not had testosterone level checked. My Dr's are suggesting I come off ADT. I don't want to; scared that PSA will start to go up. Why mess up what seems to be working just fine?
Replies to "I was Gleason 9, Decipher .99 and Stage 4a. Surgery + ADT (Orgovyx) + pelvic radiation...."
Could maybe ask doctors if they recommend darolutamide or similar after stopping Orgovyx. Maybe a way to still guard against recurrence, dunno. Of course I don’t know what the right thing to do is, and the doctors have probably considered all this.
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My doctor recommended 1000 IU or 25 mcg of vitamin D and 1000 mg of calcium while on ADT to help with bone health. Dunno if it could help with joint and muscle weakness. Exercise with weights is supposed to help.
If i get to 24 months on ADT (am only almost 3 months in) and radiation then I would want to try to stop or taper off to see if my psa would stay down. I am Gleason 8 and .86 but it’s still high risk. If they think they can put it into remission I think I will want to see if it is. It would be nice to be able to get off the drugs one day. But I imagine it can be scary and would suck if it comes back up.