Hesitant to begin drug treatment for my osteoporosis
Hello! My first post here as a new member. I am an active 69 year old female who was diagnosed many years ago with osteopenia but now have osteoporosis. When diagnosed with osteopenia I gave several drugs a try. I had side effects from all the oral choices I took, and when giving myself Forteo shots, broke out in hives all over my body. After that, I decided I would take my chances and go the natural route to keep my bones healthy with diet, consistent exercise and Calcium/Vitamin supplements. Fast forward to present time my last bone density scan was worrisome, (a -4,4 T score in my spine). An endocrinologist strongly suggested treatment, (shots or infusions), but I still fear side effects. I am currently trying to educate and empower myself by researching all options. I am already a bit overwhelmed with so many differing opinions. Drugs or no drugs?! The possible serious side effects of drug treatment still frighten me. Has anyone here diagnosed with more advanced osteoporosis, remained fracture free? Am I at such a high risk that I’m doomed without drug treatment? Thank you in advance for any advice, experiences, etc.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
I apologize for the errors in my last post with voice text. I meant to say I'm hoping to maintain this over the long term and will keep monitoring with bone scans and bone marker tests.
Your comment is one of the BEST I’ve read on this board. I was diagnosed recently at 63 YO with osteoporosis. I was surprised and shocked. I am 100 pounds, eat a fairly healthy diet, exercise 3 times a week, do yoga, and golf . I have read Keith McCormick’s “Great Bones”, along with listening to many podcasts on medications, exercises, etc. Just like you, I am doing lots of research. I am waiting for my medical records so I can send them to Dr McCormick because I would like to do a consultation with him. In July, I see an endocrinologist. I hope she will do lots of lab work to see what is causing my OP before putting me on medication. I would like to try a natural path (strength training, supplements, better diet) for a year. If things don’t get better, then maybe I will go on medication. I am hoping Dr McCormick will be able to provide some insight into what is causing my osteoporosis and how to improve my bone density. Good luck to you and I hope you can keep us updated on your progress.
Hello,
Thanks for that important information. I am 58 and I discovered I had osteoporosis about 18 months ago and have been researching ever since.
My femoral neck is -2.2. My BMI is 20.6 and was told it is highly recommended
that I start medicine. I was told to start on Reclast but after researching it I discovered if anything goes wrong it stays in your system and have to suffer the consequences which seemed severe. I decided to go on Forteo because it was an anabolic medication meaning it promotes bone formation and a well known endocrinologist said it's best to start with an anabolic drug. He also said to NOT start with Fossomax-the sequence of medication is extremely important.
Unfortunately my health insurance does not cover Forteo at all! I may have to start with Tymlos instead. I may have no choice. I discovered the side effects of Tymlos are belly fat, joint pain, tiredness, diarrhea, fatigue and bone or joint pain. I asked my nurse practitioner about utilizing other tests and she did not know anything about alternate tests.
I am seeing Dr Chatterjee in Columbus OH and she is Dr Chatterjees nurse practioner. I know I need to go on medicine but very hesitant.
Thanks for the info you provided it truly helped.
I discovered the same thing!
It is important that we all need to remember that named side effects of any drug are only possible not inevitable.
Most people do not have side effects. We tend to hear from the people who do. I've been on Tymlos for over a year and haven't had any. I'm not unusual. It has done wonders for me.
I am learning so much by reading these comments. However, I am looking for comments from anyone taking Fosamax. Of course, the list of side effects scare most anyone, but so far, so good for me. Any comments will be much appreciated.
Did the recommended limit of 5 years fosomax/alendronate. No problems but I followed the instructions without deviation
My numbers are the same and I am considering stopping meds myself because of reactions to Prolia and fosamax. I almost think I sound just quit but the drs keep encouraging me not to. It’s so confusing is t it.?
I was told I would only have to take it for two years.....happy about that. I do, most definitely, follow the instructions very closely and carefully. I have noticed there are several different kinds of bone medications and have wondered why he picked Fosamax, but being I am not having any noticable side effects maybe I should not bother to ask. Thanks for your reply.