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Offering hope: Dad's journey with Glioblastoma stage 4

Brain Tumor | Last Active: 11 hours ago | Replies (31)
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@jeff2025glioblastoma

My son (now age 55) had surgery July 7 2023, Glioblastoma Stage 4. Wild type. Recurrence Oct. 2024 and another surgery and now on a clinical Trial at Barrow Neurological/ Ivy Brain Tumor in Phoenix, AZ.

He may need to now have radiation on an area on his Thalamus (inoperable area) and we are checking into Mayo in Scottsdale for Proton Therapy for the radiation.

Have any of you had the Proton radiation at Mayo?
Thoughts please .
Sue

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Replies to "My son (now age 55) had surgery July 7 2023, Glioblastoma Stage 4. Wild type. Recurrence..."
dconway817 | @dconway817 | 18 hours ago

of Temodar on June 11th also at Mayo Scottsdale.

He did very well with the radiation. He’s side effects were not too bad, very tired which is continuing. He’s losing the hair on the front of his head and lots of skin peeling from the radiation. That is resolving now.

Please contact me if you have any questions. Good luck and God bless,
Dana

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