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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: 1 day ago | Replies (170)

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@birdergirl

i had some residual neuropathy from back fusion surgery 12/23 before the cancer infusions (2/25/25). i switched from B-100's which i've been taking forever to Life Extensions B12/Folate from amazon because i heard too much B6 isn't good (i also take multi's but switched from the female old person to just the normal ones). also taking L Glutamate. the neuropathy actually IMPROVED with this switch!!! (also my feet still feel a bit numb from the back surgery but it isn't bothering my walking or standing - just weird). good luck. The chemo really never bothered me much although WBC's and neutrophils have plummeted. not just doing Herceptin every 3 weeks. hoping it isn't as toxic (oh yeah, i DID lost all my body hair but, hey, it's just hair!)

the weird thing is that i never got the same side effects twice. after second infusion i had horrid knee pain (only at night and for about 4-5 nights) and nightly headaches but never again (and i've had 6 infusions). so, i could never really plan ( by taking aleve ahead of time, etc).

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Replies to "i had some residual neuropathy from back fusion surgery 12/23 before the cancer infusions (2/25/25). i..."

Thank you so very much for sharing this. I hope the same lowering of neuropathy happens this time - had my chemo yesterday. I napped the whole time - 5 hours - so I'm still awake at 1 am. They lowered my Benedril dose, but it still knocks me out. They gave me a dosage for the B6 and the pills from Amazon matched that. I should go look it up but, hey, I just had chemo. Getting up off the couch is too hard. If anyone needs dose info, let me know. How about Lipoic Acid? Do you take that?

Interesting that it was different each time for you. I don't have enough info yet. Fatigue really bad both times. Also got cold sores and that wipes me out. Now I'm taking Acylcovir preventively. I thought i had B vitamins covered with my multivitamin. I was surprised to see what a low does they had. Not nearly enough for this
Did you do Taxol before?
I hate being bald. I'm 76 and had mid lenght silver hair that I put up loosely with a comb. I don't miss plucking out my moustache and chin hairs though.
Love this forum!