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Rare cancer: ovarian clear cell carcinoma

Gynecologic Cancers | Last Active: 21 hours ago | Replies (170)

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@birdergirl

i'm on medicare for 4b serous endometrial. i was on trastumzab with the first infusion and medicare covered it with no problem. are you sure about your insurance or did you just talk to some idiot? i just finished 6 (carbo, platin, trastumzab (actually i'm getting Keytruda but same thing). when i get the EOB's from insurance, the herceptin is about $10K (medicare gives them about $1K i think).

from the keytruda website:
a kind of uterine cancer called advanced endometrial carcinoma in adults:
when a laboratory test shows that your tumor is mismatch repair proficient (pMMR) or not microsatellite instability-high (MSI-H), and
you have received anti-cancer treatment, and it is no longer working, and
your cancer cannot be cured by surgery or radiation.

sounds like it should be approved. maybe you need a second opinion (they take a LONG time to get, however, at least in the SF bay area). I'm pMMR (there is something called Jemperli for dMMR).

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Replies to "i'm on medicare for 4b serous endometrial. i was on trastumzab with the first infusion and..."

Hello - Thank you for the info . I am currently getting Keytruda along with Carbo and Taxol. I got the Keytruda for my very first chemo, I am pMMR and they can't do surgery on me until some of the metastis clears up, if ever. So maybe that is why I was allowed to have it before exhausting other options, or maybe age. I'm 76 . With current treatment one tumor shrank but I have new ones, and in my lungs. Give it time, says my oncologist.

I want the Trastumzab because it is effective agains HER2. I have a score of 3+ which is the maximum. They proscribe it for breast cancer. It is in trials now for uterine cancer and looking effective it is particulary helpful for late stage. Not a cure, but a life extender, I can't get the Trastumzab until I exhaust other options. My oncologist tried, but it is an off label use now

Tell me about herceptin.