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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: 5 days ago | Replies (127)

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@microgirl

Wow, I have oral lichen planus. I have had issues with my esophagus which has led to having to have it stretched once. I see my specialist once per year but I have never been told that I have elp. I assume that it was diagnosed by biopsy. I use Clobetasol gel on my gums 3x per week.

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Replies to "Wow, I have oral lichen planus. I have had issues with my esophagus which has led..."

Hi! Yes, ELP is diagnosed by doing biopsies of the esophagus.
If you are experiencing swallowing issues I highly recommend making an appointment with your Gastroenterologist.
I was having some unusual symptoms swallowing for quite a while before I was diagnosed. Honestly, I tried to ignore the symptoms I was having!
Initially I went to the doctor because I developed a severe case of yeast infection.
I was prescribed medications which didn't help. That's why I was referred to a Gastroenterologist. I had biopsies done. The Dr called me and said he and the Pathologist were working together to figure out what was wrong. Because ELP is so rare, they had never seen the abnormal tissue samples like I had. A few days later I was told I had ELP.
It was difficult to diagnose because they had never seen a case of ELP.
ELP can get worse. Mine has. ELP can definitely be precancerous. I had biopsies and stretching done in May . The biopsy results came back as precancerous.
I hope you can see the gastroenterologist sooner than later!!
ELP can cause choking!
It's frightening!!
Please be your own best advocate!! ❤️