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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 13 hours ago | Replies (378)

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@astanko

Hello Gep. I have much to say but my wife and I are currently traveling so I must keep it brief. I also had the sensation of experiencing the world in slow motion and in freeze frames. Computers have a metric called a refresh rate - the number of times per second that data is refreshed on a monitor. I believe that CLIPPERS interferes with our brain's "refresh rate" so that we experience a lag between what is going on around us and the messages hitting our consciousness. I had a terrible time crossing a street...I couldn't properly see due to the juttery double vision AND I would look both ways but remain unsure if a car was coming. It was impossible to explain at the time, and very dangerous. I did a months-long taper off Prednizone and now get a shot of Rituxan by IV once every six months. It has truly been a miracle cure for me, this afternoon I will be exploring Málaga, Spain - a dream come true considering I could barely walk due to CLIPPERS 3 years ago. If you have this scary disease, know that there is a good chance you'll fully recover. It just takes time. Good luck Gep, I will write more when I'm home again.

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Replies to "Hello Gep. I have much to say but my wife and I are currently traveling so..."

Wow, thank you for this Ame. Your theory makes a lot of sense and it's reassuring to find out someone else has had a similar experience.
Very grateful for the advice and support!