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DiscussionSo many questions about wjether or not I have Carcinoid Cancer/NETS?
Neuroendocrine Tumors (NETs) | Last Active: Jun 24, 2025 | Replies (5)Comment receiving replies
Replies to "Hi. Thanks for all the information. My 5-HIAA Urine was 1.4 Calculated Total (E+NE) was 18...."
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@ecomandrrt: Hope you are open to a few comments. It helps me to have a list of concerns, questions of best treatments, side-effects of medication/treatments, surgery(or radiation) vs. chemo, other specialist consults needed, doc recommendations for prognosis with &without treatment, etc. This allows me to get info to help me make decisions in a short time span. It also might be beneficial to have a relative or friend with you during the appointment who you can verify info post-appointment.
NET specialists are needed now to formulate your successful treatment plan. I will be thinking of you on Thursday!