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Profile picture for ecmoandrrt @ecmoandrrt

Hi.
Thanks for all the information.
My 5-HIAA Urine was 1.4
Calculated Total (E+NE) was 18.
Creatinine, Urine was .58
CHROMOGRANIN A, LC/MS/MS was 85.
I agree with Pet scan. Fighting insurance.
I live outside of New Orleans and Ochsner Hospital on Jefferson highway has one of the best cancer centers. And an excellent NETS program. Lucked out with that.
Seeing PCP this Thursday.

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Replies to "Hi. Thanks for all the information. My 5-HIAA Urine was 1.4 Calculated Total (E+NE) was 18...."

@ecomandrrt: Hope you are open to a few comments. It helps me to have a list of concerns, questions of best treatments, side-effects of medication/treatments, surgery(or radiation) vs. chemo, other specialist consults needed, doc recommendations for prognosis with &without treatment, etc. This allows me to get info to help me make decisions in a short time span. It also might be beneficial to have a relative or friend with you during the appointment who you can verify info post-appointment.
NET specialists are needed now to formulate your successful treatment plan. I will be thinking of you on Thursday!