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Undiagnosed neuropathy and weakness

Neuropathy | Last Active: 1 day ago | Replies (10)
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@johnbishop

Hello David @davidcrich10, I would like to add my welcome to Connect along with @celia16 and others. It is frustrating not to have a diagnosis and a treatment that provides some relief. From your description of the symptoms, it sounds similar to Cauda Equina Syndrome.

"Cauda equina syndrome is a medical emergency that happens when an injury or herniated disk compresses nerve roots at the bottom of your spinal cord. The cauda equina nerves communicate with your legs and bladder. It causes back pain, weakness and incontinence. Quick surgical treatment may prevent permanent complications."
-- Cauda Equina Syndrome: What It Is, Symptoms & Treatment
https://my.clevelandclinic.org/health/diseases/22132-cauda-equina-syndrome
There are other discussions and comments from members on the condition if you want to read what others have shared - https://connect.mayoclinic.org/search/discussions/?search=Cauda%20Equina%20Syndrome.

You mentioned having MRIs but they didn't show any lesions. Did your symptoms come after an injury or did they start gradually over a period of time?

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Replies to "Hello David @davidcrich10, I would like to add my welcome to Connect along with @celia16 and..."
David Rich | @davidcrich10 | 1 day ago

Thank you so much for this John. Yes, it is indeed very like the symptoms of Cauda Equina; however that has been ruled out by the MRIs and by the doctors. Again, frustrating!

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David Rich | @davidcrich10 | 1 day ago

Hi John. Thanks for your question. No, there was no injury. It started in 2022 with a bout of double vision, some balance troubles, and the beginning of urinary and bowel problems. I was diagnosed with sarcoidosis - but that doesn’t seem to be the issue. Things have got progressively worse over time. Then in February I lost all strength on my left side, including my arm. Some of that has returned, but that landed me in a wheelchair and a catheter. Stroke was ruled out so that is presumed to be neurological as well.

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