← Return to Conflicting options - should I get a third?

Discussion
phbphd1992 avatar

Conflicting options - should I get a third?

Prostate Cancer | Last Active: Jun 28 5:12pm | Replies (26)

Comment receiving replies
Profile picture for surftohealth88 @surftohealth88

My husband was on AS for about 10 years BUT his "surveillance" was flawed and he ended up with 4+3 and cribriform (aggressive) cells in one single core with IDC formation. For that reason he has to have RP and opportunity to have TULSA or focal therapy , or any other less aggressive therapy was missed, not to mention that even RP would have much better results with , lets say 3+4 gleason.

So, PLEASE if you decide to go on AS go to some big center that is specialized in cancer care and do your surveillance there. You might be just 3+3 gleason now but it is a cancer and you will have the best care in a big hospital center where the approach is multidisciplinary and where the best and newest machines are situated.

You should have MRI done yearly ADN transperineal biopsy every 2 years with MRI guided sampling. My husband had MRI every year but only one biopsy and that was a mistake !

You are very early on your journey but don't take 3+3 lightly ! It can turn into aggressive cancer in couple of years. Read as much as possible about PC and be your own advocate - unfortunately that is the only way to get the best possible care and to make an informed decision. We trusted urologist who turned out to be completely incompetent in the area of AS.

Forgot to say - ask for genetic testing of your cells (Decipher or similar). You want to know your risk level at this point.

Wishing you the best of luck and may your 3+3 stay that level forever : ) !

Jump to this post


Replies to "My husband was on AS for about 10 years BUT his "surveillance" was flawed and he..."

The Decipher on the biopsy is a big deal. I was in AS territory until that came back and it was correct, the pathology of my removed prostate showed more cancer than any test indicated and that I caught it in time before it became far more problematic. As a result I kept my nerve bundles and had zero long term side effects (no ED, no incontinence). Knowledge is power.