Any one with Neuroendocrine tumors getting the shot once a month?

Did they say why the switch from shot to pill? Thank you

Not sure where else to go for second opinion. I am already going to UW health carbone cancer center.

Ok. I am just curious because I have been taking oral chemo for almost three years. I took captem which is both capecitabine and temozolomide for about a year to shrink the cancer. I have been on a reduced amount of capecitabine since to keep things stable.

There is a new oral version of octreotide that is used to control carcinoid syndrome. Perhaps that is what @docoltun is referring to?

I've been told by Oncologist they are working on oral versions of Octreotide and Lanreotide. But who knows when those might become a reality.

As far as opinions go, every time I talk to an expert I get a different one. This is especially true when it comes to surgery. In my personal experience, I've learned to not be in a hurry to "FIX" a problem. Sometimes the cure is worse than the cancer!

Thank you! Like minded...

The only side effect my husband expressed was painful injection and some swelling or a tiny subcutaneious 'knot' at the site for a day after.

My husband started Roth Octreotide & has now switched to Lanreotide, both shots makes him itch & break out in hives , maybe every 2 or 3 months it looks like he gets a severe case of acne(where he won’t leave the house) Thus is only from the neck up. We spoke with the oncologist who responded he had heard this happens but rare