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Microscopic Colitis

Digestive Health | Last Active: Aug 25 2:39pm | Replies (103)
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Profile picture for sarahpa @sarahpa

Thanks Margot and to others who replied. Sorry to hear about the "bruising". That is something I have not experienced.
I guess at this point, I have no reason to get off B. I wish I could go back to life without MC, but when I hear other's accounts of their struggles, I realize for the most part I am stable and don't really want to mess with the current status quo.
I hope you continue to do as well as you are doing!

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Replies to "Thanks Margot and to others who replied. Sorry to hear about the "bruising". That is something..."
janstur | @janstur | Aug 19 10:14am

Hi Sarah (and Margot)
I have been lucky as well. Had 6 weeks of diarrhea in December and then was diagnosed with MC. Tried Budesonide and the 9 mg. starting didn't do well for me. But when I had problems again, they started me on 6 mg and tapered to 3. I've been on 3 since mid June with really no significant side effects. I pretty much eat what I want and am doing well overall. I am a little on the constipation side, but have BM every day and it's not significant. I'm afraid to go off it and don't want to mess with it. In my initial reading I remember someone saying they went off, had another flare, and then the Budesonide the 2nd time didn't work. There's not much about long term use. I guess we are guinea pigs. Is anyone else on 3 mg long term? -Jan 65y

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