Hi Sarah,
I guess I am a Long-term Budesonide user.
I developed frequent diarrhea about 2 years ago, had a colonoscopy, was diagnosed with microscopic colitis (October 2023) and was put on Budesonide 3 mg daily. It was amazing, and I had almost immediate relief. I have been on this same dose daily since that time. I have occasional short term flares (1 - 2 days) but recover quickly. I usually have 1 BM in the morning, normal type, and am free to live a bathroom-free day after that. The only side-effect I have is some bruise-type red areas like a bruise, but without any pain, on my arms. I was told this was because Budesonide is a prednisone. Since it does not bother me, I have not tried to get off B. but just live with it. Margot (85 yo F)