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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: 4 days ago | Replies (524)

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@bradthompson88

I am recently diagnosed with stage 4 pancreatic adenocarcinoma that has metastasized to my liver and other places.

I’m reading lots about this disease and haven’t even started chemo yet.

But, since I’m in palliative care, my thoughts alternate between many years of remission to short term fatal illness. I feel compelled to get my affairs in order but I don’t dwell on an early death often.

I share everything with my wife of 33 years but I do worry that as she becomes my caregiver, I may overburden her with my feelings.

Maybe I will be able to teach this fall? Maybe not. How much will I be able to do with chemo? Will I end up going to ER with complications? How do we continue with one income? I am a band and Career and TEch Ed. Teacher and I LOVE teaching. It is more than my job, it is part of who I am. I believe in relationships so I work hard on building them with my peers and my students. Our school is k-12 of 180 kids so summer small…hence wearing 2 hats.

Not being able to teach means there will be no band or CTE classes as the teacher shortage is much worse than the media portrays. I already feel the guilt of things I may not be able to do; Someday, hold a grandchild, give advice to my grown sons like my dad did for me. Take my boys fishing…

Dealing with the guilt of letting all my students down(though completely irrational I know) is something I think about.

Losing weight and becoming weaker…how my kids will see me. How my wife will eventually have to bury me. How we won’t be able to grow old together.

Everything is still so new and raw. I like to think I am at peace for me, but how it will affect everyone else is what hurts.

I am 55 and in very good health and am going to try to do some clinical trials along with my chemo. We live 380 miles from Mayo in Rochester so that is where I will go except for regular chemo.

I don’t know if I should look to a therapist (I used one several years ago when bad bosses pushed me over the edge) to talk to because no one around me in my small town of 700 has this disease or anything like it.

My family and my wife’s family have been wonderful, but I dont want to be that person that has to always talk about the cancer. I want normal stuff when we visit.

Anyway, I go back tomorrow for a 2nd attempt at liver biopsy. Ct guided this time as tumors are so small. Then the port gets put in. Once that is in I feel like if I have denial, it will go away.

The crazy part is I feel completely fine. They found the cancer because I got pancreatitis. There weren’t even looking for it. I thought it was a complete gift to catch it early…only to find it had moved to my liver and lymph nodes and possibly in my thyroid as well. So much hopes going up then pushed way down. It’s a roller coaster and I hate roller coasters.

My wife and I are planners and this has shattered our ability to make plans.

Did I mention that we gutted our kitchen a week before the cancer diagnosis? I was going to do some of the work to save $$. Thankfully, small town contractor whose kid I teach will add that to what he was already going to do.

They are working really hard to get things put together before I start chemo so I have a place to crash(we are living in our basement now.)

As I reread this I can see how jumpy my thoughts are. I do type them out in a google doc for my benefit and so my wife can read them someday. Thanks for letting me get this off my chest. It makes me feel a bit better talking with people that will get it.

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Replies to "I am recently diagnosed with stage 4 pancreatic adenocarcinoma that has metastasized to my liver and..."

I can relate to a lot of what you said. Cancer has taught me a lot, most of which I never wanted to know. But, I learned that the real me isn't the physical me. To the folks that care about me, and they aren't always in my daily life, it is the positive impact that I have had on them. Ever have a student, now an adult, bump into you and thank you for helping them through something? Do you always remember? It is ok if you don't. They do. I commend you for bearing your soul. That takes courage. But, letting it out helps you mentally and emotionally prepare for what tomorrow brings. None of us know what that is. Also, if a student, once a student always a student, wants to open a door for you in a physical moment of weakness, let he or she. It is their way of saying thank you. Allow yourself that moment. You earned it.

@bradthompson88 Thank you for sharing. Many of us reading your words, whether or not we are experiencing advanced cancer, can relate. As for "jumping all over the place", your mind led you to write as you wrote, so it is in the order you needed. When I write, I rarely if ever edit anything; it just is as my mind placed it.

For myself, I often wonder about the legacy my life may leave behind. Having an incurable blood cancer that cannot be addressed by the more common method of stem cell transplant due to my kidney disease that is separate from that blood cancer, I am stuck for Life in the limbo of daily dialysis. Not a kidney transplant candidate due to the blood cancer. A never-ending circle. And at this time I have a "hard no" when it comes to switching to hemodialysis over my peritoneal dialysis if there was to be complications.

So, each day I am grateful for my feet hitting the floor. Even if I cannot feel the floor with my left foot due to neuropathy! And each day I attempt to be a role model of what one can do with limited energy or limiting health concerns. No, I won't do the dunk tank at our little town's 4th of July celebration, but I can sell tickets for it! I can't march in the parade but I can drive my friend's 1947 Mercury for him.

Am I scared? Sometimes. But I want to think that over the decades, I have helped make a difference.
Ginger