Connect
← Return to Recently Diagnosed PMR Disease Progression
Discussion
Recently Diagnosed PMR Disease Progression
Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (35)Comment receiving replies
Thank you so much for your input.
Both my primary care doctor and rheumatologist seem to want me off the prednisone as fast as possible.
But as you and others have said maybe the taper every 2 weeks is just too fast.
Replies to "Thank you so much for your input. Both my primary care doctor and rheumatologist seem to..."
Connect
What I have found from the chat room, other PMR people, and my own Dr is that YOU need to be in control of the prednisone. They cannot order something and have you stick to it. Yes, I guess they could but your body is the one calling the shots! True, you want to be off of it (prednisone) but you also need the benefit of it. A Catch 22, as they say. My Dr does not want me to move backwards (have a flare) but wants me off ASAP, of course. That could be a year or more given the standard tapering schedule. see Dejaco C, Singh YP, Perel P, Hutchings A, Camellino D, Mackie S, et al. 2015 Recommendations for the management of polymyalgia rheumatica: a European League Against Rheumatism/American College of Rheumatology collaborative initiative. Ann Rheum Dis. 2015;74:1799–807. [DOI] [PubMed] [Google Scholar]
and
https://pmc.ncbi.nlm.nih.gov/articles/PMC9796644/