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Adding a second medicine question

Prostate Cancer | Last Active: 6 hours ago | Replies (23)

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@jeffmarc

After all this time, if your PSA has remained < .01 For over a year, stopping ADT really makes sense.

You can get blood test every month for three months(or longer) to see if the PSA starts rising, Then every three months if still low and eventually every six months.. Close to 70% of people with PC are cured or at least go into long-term remission.

I know a lot of doctors would recommend that, you could get another opinion.

I attend weekly advanced prostate cancer meetings with Ancan.org. We had somebody come in to a meeting recently who had his PSA start to rise 30 years after he had surgery, He was a Gleeson nine also. We actually get a lot of people in who are Gleason nine and their PSA starts to rise after many years off drugs.

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Replies to "After all this time, if your PSA has remained < .01 For over a year, stopping..."

"Close to 70% of people with PC are cured or at least go into long-term remission." I hope and pray you are correct. With Stage 4a, Gleason 9, and Decipher .99 at diagnosis its been hard for me to be positive. I've had removal + radiation + ADT (Orgovyx 29 months). Although my PSA has been < 0.01 for 25 months now post radiation, It's scary to risk coming off ADT. But, someone else on here said that maybe the "PSA trajectory" has been changed. I know I probably need to come off ADT to see what will happen, but that's scary.