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@kmmi

Yes I am keeping a journal of the dose and my pain and stiffness levels. I go back to see the doctor at the end of this month. I plan to go over it with him. I was doing so much better at 20 mg OK at 17.5 mg but at 15 mg. I'm in pain all most all day.

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Replies to "Yes I am keeping a journal of the dose and my pain and stiffness levels. I..."

You should not be in significant pain like this. Your prednisone dose is almost certainly too low.

In my case, I was initially put on 10 mg/day, then 20 mg/day a few days later, then 60 mg/day a few weeks later, this time by emergency room doctors due to double vision and continued pain. The prednisone dose must be adequate to take away most of the pain, or you will experience inflammation that can be very dangerous, including blindness if it turns out to be giant cell arteritis. Further, the long term prognosis and chance relapse turn out to be better for those that are initial on fairly high doses of prednisone.

In my case, after about a month of 60 mg/day of prednisone, I was prescribed weekly injections of Actemra (tocilizumab), and I began tapering off prednisone over 6 months. Prednisone has long term side effects you don't want, so it is good to get off, but not before the inflammation has been taken care of. Actemra turned out to be very effective for me with almost no side effects.