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DiscussionDown to 1mg prednisone and then extreme fatigue sets in.
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (37)Comment receiving replies
Replies to "My history is very similar. PMR started about 10 months ago with extreme pain. 40 mg..."
Waaaaay outside any norm.
Be careful, and aware of adrenal insufficiency and adrenal crisis. Unless I am missing something, I agree with the “…disaster waiting to happen” reply by someone else.
If possible, you should get a second opinion stat.
That sounds like a big disaster waiting to happen. You've been on prednisone a long time, so your adrenal glands are probably offline. When I started tapering down from 5 mg, my rheumatologist told me to taper 1 mg per month. I also take weekly Actemra injections, so my PMR and GCA are controlled by the Actemra. My biggest risk with each 1 mg step down is running into adrenal insufficiency. If you go from 5 mg to 0 in one step, you could feel really bad in the best case, and maybe go into adrenal crisis in the worst case. You could also have a bad PMR flare. Most people who are not taking a biologic drug like Actemra or Kevzara taper a half milligram a month in order to avoid a flare or adrenal insufficiency.