Over a year ago I went for a second opinion about my endometrial cancer at MSK and was incredibly disappointed. The doctor dominated the conversation, asking me questions about what had happened with my case so far. She fended off any attempts by me to ask questions. Then she recited the standard of care at me. If I had wanted a recital of the standard of care, I could have listened to my own oncologist. As I was leaving, I softly expressed how disappointed I was, and that this was not what I was hoping for from a second opinion at MSK. I might have made her cry.

They also redid the pathology on my original specimens, and they screwed it up. My original pathology report said my specimen was a p53 mutant, based on the immunohistochemistry. I had the DNA sequenced and there was, in fact, a p53 mutation. But the MSK pathologist looked at the same slides and said it was normal for p53. Wrong.

Then, more than a year later, I contacted MSK about a clinical trial. Initially they called me right back, and asked, among other things, if I had been there before. They declared that I was this doctor's patient. I said that if I came for a trial, I'd rather see someone else. They said they'd get back to me about trials I might be eligible for, but I never heard from them again. So I don't know if there just aren't any trials that I'm eligible for or if I've been black balled.