@ecomandrrt: I would suggest asking your doc for 24hr urine test to rule out seratonin elevation. Also try to get a Gallium PET scan with&without contrast, which will pinpoint all tumor locations and have data to determine treatment options.
Carcinoid Syndrome can visualize similar to your red face, neck, etc. and you would want a cardiologist to evaluate Echo test for ejection fraction percentage and heart valve deterioration. I wish you could get a 2nd opinion from a Neuroendocrine Tumor Medical Oncologist - an expert to verify diagnosis and suggest best treatment. Be persistent with health insurance provider because getting treatment sooner than later could be fatal.
I am a Neuroendocrine Tumor Cancer patient and felt I needed to alert you to urgency to receive diagnosis and treatment available.