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More than 90% of my seizure happened when I was sleep
Epilepsy & Seizures | Last Active: Aug 1, 2025 | Replies (36)Comment receiving replies
Hi Chris,
Thanks again for your suggestions. Most of my seizures happened during my sleep - eye closed. The three ones that happened when I was awake - my eyes were opened. Also the seizures were fairly short - less than 1 min. I do not have much body jerking, just cream, my heart rate goes up to more than 100 beats/min, and my blood oxygen level goes down - less than 95%. I knew these because initially we thought my symptum is due to the the sleep apnea. Till the same symptum happened when I was a wake. I will ask my doctor about PNES in my next appointment. Thank you again.
Jgu
Replies to "Hi Chris, Thanks again for your suggestions. Most of my seizures happened during my sleep -..."
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@jgu
Good Morning Igu,
In a great post of @jakedduck1, he mentions some differences between PNES and epileptic seizures that I copy here:
Typically, patients with epilepsy have their eyes open during a seizure; in contrast, those having psychogenic episodes usually have their eyes closed.
Patients experiencing psychogenic seizures often deal with negative emotions before and during the episode, finding it challenging to process their feelings, which can lead to crying
The shaking movements in epileptic seizures are generally synchronous, whereas psychogenic episodes often lack this synchronization.
https://connect.mayoclinic.org/comment/1328829/
Please do check this possibility with your doctor in your next appointment. Do you already have a date set for this appointment in July?
All my best to you!
Chris