← Return to Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

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@tomrennie

@crmom

Welcome to Mayo Connect. First of all, take a deep breath in and slowly exhale. I have a pancreatic neurocrine tumor that has spread to my liver primarily. I was diagnosed 3 years ago. Let's kind of break things down a little, so I can understand more. I want to share what I have learned on my journey and also encourage others to share as well ok? Do you know the sizes of the tumors anywhere originally compared to their sizes on Wednesday? What do you think caused the weight loss? What can you do to take your mind off it for a brief period of time? Overthinking it all of the time causes a tremendous amount of stress. I know. I have been there.

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Replies to "@crmom Welcome to Mayo Connect. First of all, take a deep breath in and slowly exhale...."

Thank you for your reply. Up until Wednesday’s Pet Scan I had approximately 6 liver lesions with the largest being around 5 cm. The rest were about 3 cm or smaller. He didn’t give me exact measurements but said most larger ones grew approximately 30% or 1 cm in 3 months plus several new smaller lesions. Pancreas tail/body lesion had been just under 4 cm but I’m assuming it’s about 5 cm now. Pet scan just mentioned them being larger. My oncologist thinks I’ve had this for well over a year. I have a long history of heart burn, indigestion and always being told I had gastritis or GERD. I’d started losing weight in November because I cut out sweets, my coffee with creamer and a lot of high fat foods. That seemed to help do away with my heartburn and indigestion. But the weight loss has been continuing at about 2-3 pounds a months lately. I definitely needed to lose weight initially but wish it would stabilize. I was doing well emotionally before finding out about the progression. It just seems like I’m back to 24/7 worry. I know I need to pick myself up and battle on with next treatment which is Everolimus. My 15 month old grandson is coming to my house tomorrow for awhile and I know he’ll cheer me up.