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Down to 1mg prednisone and then extreme fatigue sets in.

Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (37)
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@megz

Do you have regular blood tests to check inflammation markers? Two of the main inflammation markers for PMR are C-reactive protein (CRP) and erythrocyte sedimentation rate (ESR). Most people (not all) will see a rise in CRP and/or ESR when PMR pain is present. Uncontrolled inflammation can harm the body. Don't let your doctor flick you off without investigating things properly.

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jimp | @boo3 | 2 days ago

Have had two blood tests. First in December 2024 .. CRP was 57 (normal 0-5) and ESR was 40 (normal 0-15). Rheumatologist retested in April of this year and numbers dropped to CRP- 3 and ESR-2 both within normal range so started to wean. Looking back at my daily notes and reading some of the other weaning journeys I do believe I may have gone down to much too quickly.

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