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Diabetic neuropathy
New member here. What I am really looking for is a layman’s guide to neuropathy to answer the many questions I have.
If anyone here can help I would be very grateful. As briefly as possible this is my story.
Male aged 75, 65kg, resting Blood pressure around 100 to 120 over 60 to 80. Reasonably fit due to Pilates, light weight exercises and walking two small dogs.
Diabetes type two was diagnosed about 12 years ago and I have been taking Glifage, currently 850ml, twice a day. At the same time I started to take statins. My regular A1C tests were usually in the 5.2 to 5.5 range. My home glucometer fasting readings are generally in the 110 to 125 range but go much higher when I occasionally break my dietary rules.
During my regular visits to my endocrinologist she would prick my toes and feet and was satisfied that I could detect the touch. She brushed aside my complaints that my feet felt either hot or cold when I knew that they should not. I was often getting pins and needles and had to keep moving in bed. More recently my fingers started to have the same symptons. I have never felt pain, just numbness and discomfort
A orthopaedic surgeon identified neuropathy and prescribed both Gababentin and Pregabalin to relieve pain. They seemed to have little effect and my regular doctor took me off Gabapentin and reduced the Pregabalin to 75mg from twice to once a day. At the same time she prescribed ??? which had a variety of bad side effects and caused me to lose 6kg (which was nice) in a month.
So after a battery of tests, all showing me to be very healthy, I have no idea where I am or what to do. I need some reliable understandable information about how the disease is treated, how it is reversed, how it can be stopped from getting worse and how it can be managed.
In the interest of full disclosure I had a pacemaker fitted last year and now take Lixiana and Ancoron. Also I live in Brazil and my Portuguese is moderately good but does make detailed information from doctors subject to misinterpretation.
If you got to the end of this, congratulations :))
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i got my levels tested mostly normal before has been low .
just wondering why did your neurologist said no to b12 .
i know lot of people take it for neuropathy . combination of b vitamins help with pain for many people .
Great, yours are normal. First, please let me correct my statement upthread about b12. I meant to say that it’s excessive B6 that my neurologist warned me of. Not B12. B12 even in mega doses were fine according to him. I’ve taken large doses of B12 per direction of my neurologist. Currently take 3000 mcg per week sublingual which isn’t considered large by most I’ve talked to. I’m not sure low B12 was the cause of my paresthesia, but it seems a little better since I went in supplement. My doctor did tell me that too much B6 can have very severe symptoms of neuropathy and that’s when he said don’t take any of it in supplement form.
sorry to post again
just want to be more clear
have been dealing with DM neuropathy with pins and needles sensation .
high doses of b12 b6 found in medical food like Metanx/ neuropathy support is what gives me relief.
it has high doses of methylcobalamine,pyridoxine HCL. i checked my b12 and b6 levels
.my b12 levels ok around 500. but my b6 levels are high at 61 ( upper range of normal is 21).it has been 100 few years more. when ever i stop my supplements the pain becomes more
my question to experienced people here
1. are those b6 levels acceptable
2.any one taking b6/b12 supplements for neuropathy
highly appreciate any input
thanks
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1 ReactionI read on Google that people with low B12 get pins and needles in feet. We need 4. 5 micrograms daily. A steak is about 3.5. Your nerves are loosing there protective coating. Take the best absorbed form METHYLCOBALAMIN
Good luck.
I hope you’ll get responses. I’m pretty sure there are members around here who have had issues from high B6.
Interesting B6 values in blood have to be optimum range.
Reason being too low n too high can cause neuropathy symptoms.
Plz consult your physician for complete picture.
Wish you all the best.
I was diagnosed many years ago with peripheral and autonomic neuropathy due to diabetes. The thing that helped the most was to get the blood sugars into range set by my endocrinologist. Regarding supplements, my doctors recommended a good all purpose daily vitamin with minerals (not an overload of any one particular thing).
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3 ReactionsI wish I absorbed normally, but have to have sublingual. Not sure if that comes in a multi vitamin.
Can you describe what if any difference you saw with symptoms after you had sustained improvement with blood sugar numbers?