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lulu1944 avatar

New here, introducing myself.

MAC & Bronchiectasis | Last Active: Jun 26, 2025 | Replies (11)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@lulu1944 Welcome to our MAC and Bronchiectasis Support Group. Let me begin by saying that incidentally finding Bronchiectasis, "tree in bud", "nodules", "ground glass opacities" when doing a CT for another reason is not uncommon. Many people walk around with this for years without ever realizing it is present, and learn like you did or when it finally rears up as a real infection following another illness.

So, if you are asymptomatic or have slight symptoms of infection, it is possible to "watch and wait" - which is not really a passive activity - you will be asked to engage in twice daily airway clearance, eat well, get some exercise and stay away from anyone ill.

Since you have other health issues, it is important to have a frank talk with a pulmonologist experienced in treating MAC/NTM about whether this might be a possible approach for you.

Normally, I would write a longer welcome message with some references for you to check out, but I just finished one to another new member, so in the interest of time I will give you a link to it:
https://connect.mayoclinic.org/discussion/i-have-ntm-bronchiecstatis-is-ntm-always-present-in-my-lungs/
After you look at some of these resources, you might have more questions.

One thing I will point out, in the link I gave you, both the PDF file and the second video talk about the fact that antibiotics are NOT always the first choice of treatment.

Please don't worry if it takes some time to get to the "right" doctors - NTM is very slow-growing, and getting a treatment that works for you is more important than starting antibiotics immediately.

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Replies to "@lulu1944 Welcome to our MAC and Bronchiectasis Support Group. Let me begin by saying that incidentally..."

Thank you so much for the encouragement and link! Ive been busy all day or would have responded sooner! I was wondering how to find all the links on the site! Now I can do some teading the test of the weekend!