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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 3 days ago | Replies (1715)Comment receiving replies
I am new to the Group. I have been reading posts for a couple weeks. My husband, age 63, was diagnosed with Pancreatic Cancer on 8 May after a CT showed a mass and MRI confirmed. He then had an EUS pancreatic biopsy which showed PDAC, a colonoscopy that was normal, an exploratory lap, and port placement in chest. The tumor is in the pancreatic head with vessel involvement. At first they said Stage 3 and plan was chemo & radiation to get to surgery. After the Lap they saw 2 tiny nodules on the liver that were too small to be see on imaging. One came back + for cancer so now Stage 4. The Chest CT was normal. His tumor markers are all normal. CA 19-9 was 2. They said some people don't have abnormal tumor markers. He starts Chemo on Mon 23 June with Nalirifox. Overwhelmed & scared is an understatement. I cry -- a lot. Several posts on this site have been helpful.
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This is shocking news to receive. Stage IV is such a scary term. But it is just that. A term. A label. If your husband is healthy and you have smart, aggressive doctors, this can be deterred. I was dx 11/2021! I am not cured but I am still living a relatively normal life journeying through different therapies. I am on Naliri now.
Everyone’s case is different! Many have seen chemo shrink tumors off the portal vein and moved on to surgery. Try to keep him active, engaged in things he enjoys doing, and allow for chemo recovery time each two weeks. Pls also do not negate second opinions! Very important, even if you are at a pancreatic center of excellence. If you are not, pls make every effort to get to a doctor at one. Very good information in posts here. May God give you wisdom and increased faith as you walk this journey.💜
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I’m 55 and his story sounds a lot like mine. I go to try to get a ct guided biopsy for my liver. Plenty of tears shed here too. I asked PanCan for survivor names as well as those on here. They help show me that we can live much longer than Dr. Google says. I want to get started on my chemo. I’m glad he is getting started on his. I wish your husband and you all the best and may God be with you through all of this.