Your husband has the genetic version of IBM, I do not, my IBM has no explanation, I had a muscle biopsy years ago which showed that I had IBM, the biopsy was correct, and I am now dealing with significant muscle wasting in my legs, hands, arms, shoulders and many other areas, I’m in a wheelchair, and am plugging along. I wish the best for your husband, it sounds like you are aggressively treating his IBM and I wish you all the success in his treatment.