← Return to More than 90% of my seizure happened when I was sleep

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @Igu
In your recent post in another discussion - https://connect.mayoclinic.org/comment/1331610/- you mentioned having normal MRI and EEG results, despite experiencing 3-4 seizures during your 72-hour EEG monitoring. You also said that Keppra hasn't been effective in reducing your seizures.
This makes me wonder if you are not experiencing PNES Seizures (Psychogenic Non-Epileptic Seizures). PNES episodes can look very similar to epileptic seizures, but don't show the typical electrical brain activity on EEG, which could explain why your EEGs appeared normal even during your seizures. Additionally, PNES typically don't respond to traditional anti-epileptic medications like Keppra.
I'm sharing some resources that might be helpful:
From the Epilepsy Foundation:
https://www.epilepsy.com/diagnosis/imitators-epilepsy/psychogenic-nonepileptic-seizures
Current PNES discussion in our group:
https://connect.mayoclinic.org/comment/1288235/
Of course, I'm not a medical professional, but I just thought these resources might give you some additional information to discuss with your epileptologist.
After reviewing those resources, do any of the PNES symptoms or descriptions match what you've been experiencing?
Wishing you a nice weekend!
Chris

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Replies to "Hi @Igu In your recent post in another discussion - https://connect.mayoclinic.org/comment/1331610/- you mentioned having normal MRI..."

Hi Chris,
Thanks again for your suggestions. Most of my seizures happened during my sleep - eye closed. The three ones that happened when I was awake - my eyes were opened. Also the seizures were fairly short - less than 1 min. I do not have much body jerking, just cream, my heart rate goes up to more than 100 beats/min, and my blood oxygen level goes down - less than 95%. I knew these because initially we thought my symptum is due to the the sleep apnea. Till the same symptum happened when I was a wake. I will ask my doctor about PNES in my next appointment. Thank you again.
Jgu