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Down to 1mg prednisone and then extreme fatigue sets in.
Polymyalgia Rheumatica (PMR) | Last Active: 17 hours ago | Replies (37)Comment receiving replies
Hey @boo3
Sorry to hear you went from tapering down to 2 then back up to 14. I’m currently with my second bout of PMR, approximately 10 years apart. Been on prednisone for two years now, which was my tapering time to be completely free of it 10 years ago. I am now on 5 mg this month, but was down to 2 in December until I had 3 excruciating days which brought me back up to 10. Have been tapering 1mg/month since February. Starting in July I will take @megz advice and taper .5mg/month using her schedule as well, and hope for the best. I wish everyone suffering with these symptoms all the best in their road to recovery!
Replies to "Hey @boo3 Sorry to hear you went from tapering down to 2 then back up to..."
Thanks for the comments. I do believe after reading all the other posts that I may have been on an unrealistic schedule. Only started the 20 mg beginning of December’24 and not truly understanding the condition attempted weaning too much too soon. Rheumatologist not a big help but from what I see most of these posts state that they lower their doses by feeling. Trial and error. I golf (which I don’t do as much at this time) but still try with an Advil or two.
Heals1225… When you increased back to 10 did you arbitrarily choose 10 or did you attempt any lesser dosage between the 10 and 3?
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btw, I also have been in more pain in the early morning so the last few days I’ve been taking 4mg in the morning and the other 1mg before bedtime, and morning pain is a little more under control now. Will stay with this approach while tapering and see if I have continued success.