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Dealing with inclusion body myositis: Want to connect with others
Bones, Joints & Muscles | Last Active: Jan 26, 2024 | Replies (19)Comment receiving replies
Do you know if you have the MTHFR gene anomaly? Hubby was diagnosed with IBM but has two copies of the MTHFR gene which does not allow him to properly use B12. We put him on methylfolate at a baby dose and it brought his homocysteine down to normal in three weeks...and stopped a lot of his muscle pain.
We also put him on an anti inflammatory diet once we received the IBM diagnosis...it really helped.
Replies to "Do you know if you have the MTHFR gene anomaly? Hubby was diagnosed with IBM but..."
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Your husband has the genetic version of IBM, I do not, my IBM has no explanation, I had a muscle biopsy years ago which showed that I had IBM, the biopsy was correct, and I am now dealing with significant muscle wasting in my legs, hands, arms, shoulders and many other areas, I’m in a wheelchair, and am plugging along. I wish the best for your husband, it sounds like you are aggressively treating his IBM and I wish you all the success in his treatment.