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13-year-old daughter with refractory epilepsy

Epilepsy & Seizures | Last Active: Jun 21 9:48am | Replies (20)

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Profile picture for jgu @jgu

Hi Chris,
My doctor told me not to discontinue the drug during the 72 h EEG. I acturally had 3-4 seizures during those 72 h EEG period. My wife took the time down and provided those to my doctor. Just do not understand how would I had seizures but EEG did not show. I will ask my doctor in the next appointment.
Thanks again for all your advises.
Have a great weekend!

Jgu

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Replies to "Hi Chris, My doctor told me not to discontinue the drug during the 72 h EEG...."

Hi @jgu
Thanks for sharing this information with us.
A thought of PNES (Psychogenic Non-Epileptic Seizures) just occurred to me, given some of the details you've shared here and in another discussion you started.
I've posted a more detailed response in the original discussion you started, where you have provided valuable information about your situation: https://connect.mayoclinic.org/discussion/more-than-90-of-my-seizure-happened-when-i-was-sleep/
I hope you don't mind that I moved the conversation there.
Chris