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Replies to "I have been on Keppra since 5/12/25. This week I have had multiple hallucinations. Contacted my..."
I have empathy for your husband and hope he's feeling better. But since you mentioned hallucination, I'm sharing the following. I have been on Keppra for over 10 years and it's worked well. I don't know if Keppra had anything to do with the following, but here it is.
1) I remember: walking on the treadmill and getting off
2) I don't remember: walking up the stairs and talking to my wife about my sister with whom I haven't spoken to in almost 10 years
3) Then I remember: walking back downstairs and getting back on the treadmill and finished my walk.
I had no typical partial complex seizure. Never experienced such a thing ever in my life. I welcome any comments. Could this have been some form of seizure? Has anyone experienced such a thing? Is this a hallucination?
@lluedke
I'm so sorry you're experiencing hallucinations. I once had a hallucination myself and it was incredibly frightening and distressing. Your neurologist's response is not nice at all. I can well understand your frustration with that lack of empathy and dismissive attitude. The first doctor who diagnosed and treated my epilepsy had a similar approach and was very uncomfortable with me trying to educate myself about my condition. As a result, I sought second and third opinions and changed doctors.
I'm also on Keppra, having started in December of last year. I haven't experienced hallucinations with this medication, but I know that individual responses to AEDs can vary significantly. Checking for it on the internet, hallucinations are mentioned as a possible side-effect: https://www.sciencedirect.com/science/article/pii/S1059131122002783.
Have you considered seeking a second opinion? If possible, I'd highly recommend seeing an epileptologist rather than a general neurologist. It has made a tremendous difference in my epilepsy journey.
Wishing you much better care!
Chris