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Diagnosed with NET si-NET Stage 1 Grade 1

Neuroendocrine Tumors (NETs) | Last Active: Jun 21 7:40pm | Replies (34)
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@carver1164

Well, officially not yet. That's just what the ct report says. That or a GIST. But I've been symptomatic for years.
I do have a question. The report says, it's a neuroendocrine or a GIST in my small intestine. Its only 8mm. Is it too small to remove? Also, a camara capsule was a further option, but that seems redundant. I'll know more on the 30th. Its been going on for so long, I just want it out.

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Replies to "Well, officially not yet. That's just what the ct report says. That or a GIST. But..."
Turkey, Volunteer Mentor | @tomrennie | Jun 20 9:10pm

What has been going on so long?

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 21 7:40pm

Hello @carver1164 and welcome to Connect. As you have been diagnosed with a GIST or neuroendocrine tumor in the small intestine, here is a link to posts from other members of Connect who have discussed having a GIST: https://connect.mayoclinic.org/search/?search=GIST.
I would encourage you to read the posts and then ask questions or make comments below the posts that interest you.

How are you feeling now? Has any treatment plan been suggested by your medical team?

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