Can someone help me about life after AUS 800 implant?

I'm sorry you are going through this and your doctor didn't give you the information to help you get through this tough period. I have a great physician and was lucky to receive great instructions. To give you a little background, I am 58 and had an RP in October of 2023 and was completely incontinent for nine months until I was healed enough to get the AUS implant.
Try to be patient...I know from experience that seems impossible. It will get better. I had a lot of swelling and the lumps lasted for at least a 3-4 weeks and slowly decreased over the following weeks. Although everyone is different, I think my tolerance for pain is lower than most. That being said, my doctor was adamant that I walk as much as possible to help with the blood flow and healing.
As far as pulling gently on the device, if you can find the "top" of the bulb where the two fluid lines come in (this is just above the activation button) that's the easiest place to pull down from. You don't have to pull down much at all. My doctor told me that this was to help prevent it being drawn up and from scar tissue forming early making it more difficult to use later on after healing. The activation button is really pretty robust, I would worry about triggering it, just try to locate those tubes. Please let me know if I can provide any other information.
If you would like to talk, I would be happy to call you just private message me with your phone number.
Good luck, it will get better.

I got the AUS 5 months ago. Not very painful recovery and the results are amazing! After nine years of 5 or 6 pads a day, this is wonderful. I also got an IPP at the same time and it is equally wonderful. (3 1/2 years of ED caused by ADT)

My story is similar to @jimgaudette's.
After 12-ish pads a day for a couple of years, I had my AUS about two or three years ago. It's been wonderful,. I always wear a pad (Depends) for piece of mind, going through 1 or 2 a day while maintaining a very active lifestyle.

After the 6 week recovery period, I was able to do everything that I did before, including strenuous exercise. Start slow, but don’t hold back as exercise is really important to quality of life. BTW I am 74 years old.

I use one to maybe two of the very thin pads per day. Before when we went on vacation, I needed one large suitcase just for the pads! Also, I’m not being hassled by TSA anymore

Also, not peeing during or immediately after intimate contact is a VERY big plus.

I have heard wonderful things about the AUS by people who had it “installed”.
But it you are like me who is not a candidate for an AUS due to an urethral structure (obstruction caused by radiation) or if you just don’t want to go through pyhet another procedure I have good news.

I have been wearing an incontinence clamp for severwl years. (Many brands available on Amazon). I wear it 18-20 hours a day, with no circulation issues, and remove it at night. There are no limitations to physical activity. Swim, bike, run, weight lift. Forget it’s there most of the time, I suggest wearing a pad to avoid having to clamp it too tight. I go through one a day. Buy several brands to find the best fit. It was a life saver because the other options of multiple pads a day or the external catheter and collection bag tied to the leg are frankly disgusting, in addition to being restrictive of the cloths you csn wear and the things you can do.

Look for my recent (June 20, 2025) post about an incontinence clamp. You sound like a perfect candidate. It works wonders. Do anything, wear anything, go anywhere. Available on Amazon. Try several for most comfortable fit and efficacy.

See my comment June 20, 2025 on incontinence clamps.

Please see my comment on June 20, 2025 on incontinence clamps if you haven't already done the AUS.