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Down to 1mg prednisone and then extreme fatigue sets in.
Polymyalgia Rheumatica (PMR) | Last Active: 17 hours ago | Replies (37)Comment receiving replies
It sounds to me like you tapered too fast or too far. If you felt good at 2 mg, you could try to go up to 7 mg (2 mg + 5 for relief) and stay there for a couple of weeks. Then you could taper back down to 2, maybe in 2.5 mg steps, and when you get to 2, stay there for a month. Then taper in half milligram steps, where you stay at each level for a month. Or you could check with your doctor and see what he/she thinks ...
I just stepped down to 2 mg today, and I'll be at this dose for a month. I'll step down to 1 mg then, but I'm also taking Actemra.
Replies to "It sounds to me like you tapered too fast or too far. If you felt good..."
I am thinking in terms of percentages. 5.0 mg is a decent descending step when you’re at the higher doses but I am decreasing by 0.25 now that I’m weaning from 2.0. I don’t mind supplementing with acetaminophen and the SPM I got from my naturopath to relieve pain.
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I’m on the same taper schedule as you and also on Actemra 1 per month. Next week I’ll be down to 1 mg and after 3 weeks - off prednisone totally. I’m experiencing pain in the AM, brain fog and fatigue all day. I won’t go back. My Doc said I need to tough it out and feel’s that after withdrawal, Actemra will pick up the slack. Fingers crossed. 🙏