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Kidney disease with celiac disease
Autoimmune Diseases | Last Active: 16 minutes ago | Replies (5)Comment receiving replies
Thank you for the information. Contacted my provider and he feels it's not necessary for me to see a Nephrolist. Sad because am still having a dull pain in my kidneys. Contacted the Urologist I have been seeing not expecting whole lot. Will be looking for a Doctor who is familiar with kidney disease and celiac. Wish me luck!
Replies to "Thank you for the information. Contacted my provider and he feels it's not necessary for me..."
@dmmeyers62 The search for good, knowledgeable can be difficult, can’t it? And no fun! You might try looking for a comprehensive medical center or a university medical center. The doctors there like to do research and are usually open to patients with a puzzling diagnosis. Even if you have to drive a far distance. I think you might have more luck.
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@dmmeyers62
I would ask your urologist for an ultrasound of your abdomen/pelvis/kidneys. If you don’t get validation of your symptoms and help investigating the root cause, I would go to a new urologist/nephrologist for 2nd opinions.
Praying you get the help you need. Don’t stop advocating for yourself and your health. I have found that older women need to fight harder to be taken seriously to get the care needed. Many times you get invalidated or told it is “all in your head” when that is disrespectful and discriminatory.