I'm so sorry you're going through this. My husband's story is similar to yours, but your husband has had an even better start to this journey. . My husband had a 10cm tumor removed from the tail of his pancreas but he also had a very large tumor burden in his liver. Surgery removed the tumor from the pancreas. Y90 radioembokization killed almost all of the liver tumors. This began in 2008. Since then he's had treatments with everolimus and captem and is doing well.
Is your husband seeing a net specialist for follow up? This is highly recommended. You can find a specialist and also learn about nets at http://www.netrf.org and http://www.carcinoid.org. another good resource is http://www.netcancerawareness.org
All 3 Mayo locations have excellent net teams. My husband is being treated by Dr Sonbal in their Phoenix campus.
Do you have any specific questions or concerns that you could use some help with? Id be happy to offer whatever help I can.