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I am two months into Actemra infusions and on prednisone since March, now at 20 mg down from 60 mg for Giant Cell Arteritis.
My hair is thinning and texture has changed. I know this is a pred side effect but has anyone experienced this while on Actemra alone? Geez, I’ve been so anxious to get off the prednisone it hadn’t occurred to me it could be ongoing if I have to be on Actemra.

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Replies to "I am two months into Actemra infusions and on prednisone since March, now at 20 mg..."

@terrib2
My case sounds similar to yours. Diagnosed in Aptil 2025 with GCA and started on 60 mg prednisone. Didn't start shedding until November. I am also taking weekly injections of Actemra. I was too scared to look up if it also caused hair loss. My husband read the entire info that came in the packaging and nowhere did it mention hair loss. Of course, stress can add to hair loss and I have plenty of that! Hoping for tbe best.
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