Hi Sue,

Thanks for your reply. I have both a pulmonologist and an ID doctor. My ID doctor is the one who prescribed the treatment regimen. However, he is closing his practice at the end of this month and moving out of state. So I had to change to a new ID doctor and I have a first appointment early next month. I'll see what she thinks. I actually had to take a break and skip the azithromycin for a day so my intestines could calm down a bit. I feel better today and I'm going to try switching the rifabutin to after lunch and the azithromycin to after dinner to see if I can handle it better at night. I took it at night when I was doing the every other day therapy the last time and that seemed to be okay depending on what I ate. But it wasn't every day. The Arikayce is arriving early next week and I have another whole set of worries with that and the seemingly terrible side effects. This is all very scary. And the thing is, I don't feel bad with the MAC. I don't have coughing or a lot of congestion so I really can't get anything out. I even use the Aerobika to see if I can try to get anything going but I can't. I never get winded even walking three miles every day at 4.5 MPH speed. So I don't know what else I can do in that regard.