This is in response to Bellableu/dailyhope / etc ( above discussion on LC):
To just hear/read that others are also lost and hurting physically / emotionally/spiritually in this insidious disease is a reminder that we ( fiance with LC 4 years and myself his fiance-caregiver) are not alone . In reality - I know this . However when nobody talks about it or IF I mention his LC and how he is not any better - they just seem to say “ well, can he do anything ? Is all he do sleep ? Or you know , you just have to tough through it ….” Etc etc …then I just “shut off “ and do t say much to anyway … people on this sight realize the degree of suffering- in its many forms . To see someone you love and care for declining and changing and not sure if he/ she will improve is disheartening. Especially while trying to stay upbeat and dealing with mothers dementia .It is also hard because a chronic illness is not the same as a “seen” illness ….. and obviously many people are much worse off … I see I am rambling again about this ! I apologize …… I truly send encouragement and prayers to all of the people who are hurting . Wishing a good day to all. Karen